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RareDiseaseCoEDesk

Report patients treated and funds drawn under the national rare-diseases policy, for a designated centre.

Offered in: India only.
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What it is

For a hospital designated a Centre of Excellence under the National Policy for Rare Diseases (MoHFW, 2021). Each patient approved for support is recorded with the disorder as diagnosed, the policy group the approving committee placed it in, the approval’s date and reference, and the amount approved for that patient with where it comes from — the policy’s ceiling changes by notification, so none ships. One open approval per patient, closed with a reason when it ends. Every draw of funds names the day, the amount, what it was for — a drug, a procedure, an investigation or something else in words — and the bill it pays, and the draws for a patient can never pass the amount approved: the desk refuses it, and so do the rows themselves. Each patient shows what has been drawn and what is left. Each month the report is counted — patients with an open approval, new approvals by group, patients treated, funds drawn (drugs among them), drawn to date and approvals fully drawn — filed by hand and its acknowledgement recorded.

Who uses it
Built for: Every specialty
Reads
The patient record
Writes
Patients’ approvals and the amount approved for each, funds drawn against bills, the monthly report and its acknowledgement
Never
It does not diagnose or classify a rare disease, or decide what is approved — the clinical team and the committee do.
Access
Only people whose role includes it — the clinic owner decides who
Your data
Full PHI. Hosted in Boston, United States. On uninstall: The approvals, the draws and the reports leave with the app. The patient record keeps everything else.

In the product

Who uses it
Quality officer — the demo profile it is best tried as
Where it opens
Compliance › Rare diseases CoE /rare-disease-coe
Permission
rarecoe.read
Every compliance app in the handbook →

How it works

  1. Record the approvalDisorder, group and the amount approved, with its source.
  2. Draw against a billNever past what was approved for the patient.
  3. See what is leftDrawn and remaining, patient by patient.
  4. File the monthPatients and funds counted, filed by hand.

Rules it keeps

What it does not do, by design. A listing with only benefits is an advertisement.

It does not diagnose or classify a rare disease, or decide what is approved — the clinical team and the committee do.
It sends nothing to the ministry: the report is filed by hand.

AI in RareDiseaseCoEDesk

AskQuestions about what is on screen — “What needs attention in RareDiseaseCoEDesk today?” — answered with the records it read.
DraftSummaries and notes for the team, marked as drafts until a person signs.
Every answer shows its sources. Nothing AI writes is saved until a person accepts it.

See it on screen

Live product
01Rare diseases CoE — Report rare-disease patients treated and the funds drawn for each against their approvalCaptured from the running demo clinic
RareDiseaseCoEDesk — Rare diseases CoE — Report rare-disease patients treated and the funds drawn for each against their approval
1 of 1

Connected to

Read out of the code, not the brochure: each app below is here because one service queries the other’s tables. Install either side and the hand-over is already wired.

Reads from · 1
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Questions clinics ask

What does RareDiseaseCoEDesk do?
Report patients treated and funds drawn under the national rare-diseases policy, for a designated centre. For a hospital designated a Centre of Excellence under the National Policy for Rare Diseases (MoHFW, 2021). Each patient approved for support is recorded with the disorder as diagnosed, the policy group the approving committee placed it in, the approval’s date and reference, and the amount approved for that patient with where it comes from — the policy’s ceiling changes by notification, so none ships. One open approval per patient, closed with a reason when it ends. Every draw of funds names the day, the amount, what it was for — a drug, a procedure, an investigation or something else in words — and the bill it pays, and the draws for a patient can never pass the amount approved: the desk refuses it, and so do the rows themselves. Each patient shows what has been drawn and what is left. Each month the report is counted — patients with an open approval, new approvals by group, patients treated, funds drawn (drugs among them), drawn to date and approvals fully drawn — filed by hand and its acknowledgement recorded.
What data does RareDiseaseCoEDesk read and write?
RareDiseaseCoEDesk reads the patient record and writes patients’ approvals and the amount approved for each, funds drawn against bills, the monthly report and its acknowledgement. Its data class is Full PHI. Every app works on the same patient record — nothing is copied into a silo.
What does RareDiseaseCoEDesk deliberately not do?
It does not diagnose or classify a rare disease, or decide what is approved — the clinical team and the committee do. It sends nothing to the ministry: the report is filed by hand.
What happens to our data if we uninstall RareDiseaseCoEDesk?
The approvals, the draws and the reports leave with the app. The patient record keeps everything else.
Is RareDiseaseCoEDesk available today?
Yes — RareDiseaseCoEDesk is live in clinics today. Set up your practice on MedAppz and install it from your dashboard.
Where is RareDiseaseCoEDesk offered?
RareDiseaseCoEDesk is offered in India only: it is built on that market's own systems and rules.

Want to see RareDiseaseCoEDesk running on your own patients?

Tell us what you run and we will show you this app inside a practice shaped like yours — or answer the question the page above did not.

We use your name, phone number and clinic name for one thing: to answer this enquiry about MedAppz. It is stored on our own server, in the single region our trust centre names, and it is not sold or passed to anyone else.

Email us

You can withdraw either at any time: write to hello@medappz.com, or tell whoever calls you, and we will delete what you gave us.

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