RareDiseaseCoEDesk

◌ in development

Report patients treated and funds drawn under the national rare-diseases policy, for a designated centre.

Compliance · Full PHI · Every specialty

In development — not installable yet. Join the waitlist and we will tell you when it opens.

Offered in: India only.

What RareDiseaseCoEDesk does

A hospital designated as a Centre of Excellence under the national policy for rare diseases reports every patient treated and the funds drawn on their behalf, tracked patient by patient against the policy’s own funding cap, so the centre’s reporting obligation and its funding position are always the same picture.

See it on screen
No screenshot of RareDiseaseCoEDesk yet.This app is in development; the demo clinic shows the working clinic it will join.Open the demo clinic

What it reads

patient treatment recordsfund drawdown

What it writes

CoE reports
Same patient record as every other app — nothing is copied into a silo. Data class: Full PHI.

What it does not do

It does not diagnose or treat the rare disease — the designated clinical team does; this app reports the patients treated and funds drawn under the policy.

Every app page carries this section. A listing with only benefits is an advertisement.

Questions clinics ask

What data does RareDiseaseCoEDesk read and write?

RareDiseaseCoEDesk reads patient treatment records, fund drawdown and writes CoE reports. Its data class is Full PHI. Every app works on the same patient record — nothing is copied into a silo.

What does RareDiseaseCoEDesk deliberately not do?

It does not diagnose or treat the rare disease — the designated clinical team does; this app reports the patients treated and funds drawn under the policy.

What happens to our data if we uninstall RareDiseaseCoEDesk?

Nothing to remove yet — this app is in development.

Is RareDiseaseCoEDesk available today?

Not yet — RareDiseaseCoEDesk is in development and cannot be installed. Join the waitlist and we will tell you when it opens.

Where is RareDiseaseCoEDesk offered?

RareDiseaseCoEDesk is offered in India only: it is built on that market's own systems and rules.

Waitlist

Join the waitlist for RareDiseaseCoEDesk

RareDiseaseCoEDesk is in development and cannot be installed yet. Leave your name and number: the waitlist decides what we build next, and we will tell you when it opens.

We use your name, phone number and clinic name for one thing: to answer this enquiry about MedAppz. It is stored on our own server, in the single region our trust centre names, and it is not sold or passed to anyone else.

Email us

You can withdraw either at any time: write to hello@medappz.com, or tell whoever calls you, and we will delete what you gave us.

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