RareFind

◦ in design

Collectively not rare: 300 million people, years to a name.

Clinical · Full PHI · Every specialty

What RareFind does

A rare-disease flag is a rule family in the Rules engine — a set of rules evaluated together at one decision point over the findings the record holds, raising a flag for review — and that engine already exists as an API (POST /rules/definitions with a family, POST /rules/evaluate), with no screen of its own. No code was added for this idea, because the raising is already done. What is left of it is the part that needs data the product does not hold: the combinations of findings that should trigger the question are reference data nobody has supplied, so no rare-disease rule family is loaded, nothing matches a patient into a registry or a trial, and no registry link exists.

See it on screen
No screenshot of RareFind yet.This app is still in design; the demo clinic shows the working clinic it will join.Open the demo clinic

What it reads

the patient record, through the Rules engine

What it writes

nothing
Same patient record as every other app — nothing is copied into a silo. Data class: Full PHI.

What it does not do

It does not pronounce a diagnosis or suggest one — no phenotype criteria are typed here — and it does not match anyone to a registry or a trial: no such link exists in this product.

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Questions clinics ask

What data does RareFind read and write?

RareFind reads the patient record, through the Rules engine and writes nothing. Its data class is Full PHI. Every app works on the same patient record — nothing is copied into a silo.

What does RareFind deliberately not do?

It does not pronounce a diagnosis or suggest one — no phenotype criteria are typed here — and it does not match anyone to a registry or a trial: no such link exists in this product.

What happens to our data if we uninstall RareFind?

Every record stays; only the workflow leaves.

Is RareFind available today?

RareFind is in design: the surface exists and the platform underneath is ready. Join the waitlist and it moves up the build order.

Ask about RareFind

Want to see RareFind running on your own patients?

Tell us what you run and we will show you this app inside a practice shaped like yours — or answer the question the page above did not.

We use your name, phone number and clinic name for one thing: to answer this enquiry about MedAppz. It is stored on our own server, in the single region our trust centre names, and it is not sold or passed to anyone else.

Email us

You can withdraw either at any time: write to hello@medappz.com, or tell whoever calls you, and we will delete what you gave us.

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